Blog

Today is Rare Disease Day, so I’m showing my stripes! To me, this day is pretty symbolic of my journey of self-acceptance. Not only with having Moebius syndrome, but other parts of me I’ve been learning to accept and even share with the world. Sometimes I get down on myself for still not being as… Continue reading Show Your Stripes

You are beautiful. You are wanted. It’s ok you look like this. Don’t be scared. Your life will be amazing. You will teach others to accept how you look and not to fear you. You will teach others to love you and to love others who also look different. You will teach acceptance. You will… Continue reading Changing the World

My limbs are beautiful. They do not deserve to be laughed at or made fun of. They are worthy of love, compassion, and acceptance. I was born with Moebius syndrome, which can cause limb differences. Not everyone with Moebius has limb differences. And even those of us who do, there’s such a spectrum. It’s pretty… Continue reading My Limbs are Beautiful

I just wanted to take a moment and say that I’m proud of myself. For me, trying new things can be scary. I tend to avoid it / resist it. I can be quite comfy in my comfort zone! However, I’ve long outgrown my little comfort zone and am craving expansion. I’ve learned that researching… Continue reading Trying New Things

This is Moebius. This is strength. This is *beauty*. This is courage. This is the face of someone who’s been bullied and is advocating to help prevent others from being bullied. This is someone who has had the unique experience of being unable and then able to smile, due to having smile surgery. This is… Continue reading This is Moebius