Blog

I came across this piece I wrote about my journey living with Moebius syndrome. I wrote it when I was about 19 years old (20 years ago). It’s interesting to see how my writing style has evolved since then. This was my very first time sharing my story about having Moebius, and I’m just so… Continue reading My Moebius Syndrome Story

My friend’s 7 year old daughter asked if I could have two hands, would I want to? I’ve thought about this question before, and I just can’t ever picture myself with two hands. I just wouldn’t be *me*. My limb difference is such a part of who I am and has led to so many… Continue reading I Would Always Choose to Have One Hand

I love you when you make mistakes. I love you when you are hurting. I love you when you make the “wrong” decision. I love you when you’re struggling. I love you when you think you don’t deserve my love. I love you when you push me away. I love you. I love you when… Continue reading Love Loves You, Always

As I was helping my friend with her presentation on Moebius syndrome, I went through old photos of me. This will also be good knowledge for Disability Pride Month this month…. This little girl….she’s so, *so* beautiful. Is she smiling? No. But that doesn’t matter. That does not take away from her beauty. It’s beautiful… Continue reading What is a Smile

I went to the grocery store today and in the parking lot was approached by a woman who said she was homeless. She asked if she could talk to me about her story and if I had any spare money to help her rent a room for the night. As I listened to her story,… Continue reading Extend Compassion