What *Happened* to Your Hand?

“What happened to your hand?”

Nothing “happened” to my hand.

I wish you wouldn’t ask it like that.

When you ask me what “happened” to my hand, it makes me feel small. Embarrassed. Ashamed. Rejected. Uncomfortable. Deficient. Closed.

“How would you prefer I ask you about your hand, if I’m curious?”

It’s all about your energy and how you approach it.

Don’t pity me. Don’t assume my life is terrible. Don’t feel bad or sad for me.

Ask out of curiosity. Be non-judgmental and open-minded. You could ask something like, “I see your hand looks different. Would you be willing to tell me more about your hand? It’s ok if not. I was just curious.”

Curiosity and being respected makes me feel more open and empowered. I typically am ok and open to answering questions, but there are still some days where I’m just not in the mood to be social or talk about it.

It’s important not to make assumptions about people with disabilities. Our lives can be just as awesome and fulfilling as non-disabled people’s lives. Do your best to approach us with a neutral attitude and an openness to learn more about our disability and experiences.

Speaking of learning more, remember January 24th is Moebius Syndrome Awareness Day! Mark your calendars!! 💜💜